365 Days of Colour - Flower of the Day 321 - 327

A straight path

Sometimes it isn’t the winding road which leads to mystery and surprise.  At times the straight path unfolds and brings us treasures beyond our comprehension.

Day 321

  

Reflection 

The hard times in your life will develop the pearls of wisdom... 

Quote 

If art is not to be life-enhancing, what is it to be? ...May Sarton 

Scripture But now, thus say the Lord ‘Do not fear, for I have redeemed you; I have called you by name; you are Mine!’ Isaiah 43:1

Day 322

 

Reflection 

Time to start over 

Quote 

Art and works of art do not make an artist; sense and enthusiasm and instinct do. ...Friedrich Von Schlegel  

Scripture 

The Lord’s hand is not so short that it cannot save; neither is His ear so dull that it cannot hear.  Isaiah 59:1

Day 323

 

Reflection 

Be brave, all things are possible 

Quote 

Expose yourself to your deepest fear; after that, fear has no power, and the fear of freedom shrinks and vanishes. You are free. ...Jim Morrison 

Scripture 

The one who sows to please the Spirit, from the Spirit will reap eternal life. Galatians 6:8

Day 324

 

Reflection 

Don’t worry, it will be alright 

Quote 

Art thaws even the frozen, darkened soul, opening it to lofty spiritual experience. ...Aleksandr Solzhenitsyn 

Scripture

I pray that you, being rooted and established in love, may have power, together with all the saints, to grasp how wide and long and high and deep is the love of Christ.  Ephesians 3:17-18

Day 325

 

Reflection 

As a work in progress, go easier on yourself 

Quote 

Fear is the reason for making art. It is a means to freedom. ...Ilya Kabakov 

Scripture 

The needy will not always be forgotten, nor the hope of the afflicted perish forever. Psalm 9:18

Day 326

 

Reflection 

There is always tomorrow, you have a chance to start over! 

Quote

Art is the only way to run away, without leaving home. ...Twyla Tharp 

Scripture 

For whatever was written in earlier time was written for our instruction, that through perseverance and the  encouragement of the Scriptures we might have hope. Romans 15:4

Day 327

 

Reflection 

You are able to do all that you set your mind to! 

Quote 

Sufficient to today are the duties of today. Don’t waste life in doubts and fears, spend yourself on the work before you; well assured that the right performance of this hour’s duties will be the best preparation for the hours or ages that follow it. ...Ralph Waldo Emerson 

Scripture 

The Lord is faithful, and He will strengthen and protect you from the evil one. 2 Thessalonians 3:3

Z is for Zephyr

Zephyr - a soft gentle breeze of change 

It came on without warning, there were no loud noises a fanfare just a few tell tale signs.  It blew in as if on a gentle breeze, we all felt it as it brushed past us, noticing slight things but not really seeing as it settled at mums door.  Mum embraced all that she is and met it head on, and defines the world to mean something for her despite the situation.

She dances as it breezes through her memory, some became distant and others drifted in and out like the fallen leaves of autumn, yet, holding no regret she faces each day as new.  She has been a comfort and support as she still holds on to her humour and grace - she is all that she needs to be.

The dementia almost forces us to learn to use our senses in a very different way, learn a new language, see our lives differently.  We have each been called for a purpose, to touch each others lives, dig deeper make more effort, and go that extra mile as the lives of generations are changed.

Words so far....

A is for Alzheimer’s, B is for Behaviour, C is for Carer, D is for Dependant, E is for Enough, F is for Fear, G is for Guilt, H is for Health Professionals, I is forIdentity, J is for Judgement K is for Knowledge, L is for Love,  M is for Motherhood, N is for Neighbourhood, O is for Opportunities P is for Purpose, Q is for Quietness, R is for Regret, S is for Strategies, T is forTradition, U is for Understanding, V is for Value, W is for Websites, X is for Xerox, Y is for Yearn

These posts are part of the A-Z Challenge taking place during the month of April.  I have been sharing about my experience as a carer to a mother with Dementia.  If you would like to know more join the Arts in Health Network and also check out my website for information on some of the work I have done with Creativity and Dementia.

Y is for Yearn

I do sometimes long for things to go back to how they used to when mum didn’t have dementia, to have a bit of what I think is normality.  But if it did, perhaps I wouldn’t have seen so much of her, wouldn’t have got to know her like I have, to listen to her stories as she tells them over and over again of how she met my dad. 

Those stories some how brings his memory to life even though he has been gone for over 20 years but also brings me comfort.  There came a point where it didn’t matter how many times mum told the story as she became animated -  she remembered him calling out to her as she walked by and she turned coyly and asked ‘who me’ – she had actually noticed him before and wanted to catch his attention. We never heard the stories before the dementia and she never danced, but now she loves to sing and dance and calls herself ‘the dancing queen’ after the Abba song.

Yes I do sometimes yearn for a good night undisturbed sleep when I am there, but also I appreciate my life more and it is most certainly richer despite all the ups and downs.

Words so far....

A is for Alzheimer’s, B is for Behaviour, C is for Carer, D is for Dependant, E is for Enough, F is for Fear, G is for Guilt, H is for Health Professionals, I is forIdentity, J is for Judgement K is for Knowledge, L is for Love,  M is for Motherhood, N is for Neighbourhood, O is for Opportunities P is for Purpose, Q is for Quietness, R is for Regret, S is for Strategies, T is forTradition, U is for Understanding, V is for Value, W is for Websites, X is for Xerox

These posts are part of the A-Z Challenge taking place during the month of April.  I have been sharing about my experience as a carer to a mother with Dementia.  If you would like to know more join the Arts in Health Network and also check out my website for information on some of the work I have done with Creativity and Dementia.

X is for Xerox (copy)

Living with dementia some times reminds me of a Xerox.  It can feel as if you don’t have the original person you grew up with but the copy of the person who is unable to do all those things you took for granted.  I always thought mum would still be giving me advice and our relationship would move on to the next stage of mother/adult daughter relationship. When I was ready to listen she was slowly retreating....

I often imagine how she would express what it is like to have this unknown dancing partner I try and put myself in her well worn shoes, which is not often as looking after the practicalities can be a welcome release from the emotional side.  Thinking about what she is thinking can bring up a whole different set of dialogues that sometimes go like this:

"People suddenly don't seem to understand they repeat themselves, ignore you or get annoyed at the things that you do.  You don’t quite do it quickly enough or the right way they sigh and breath heavily.  Their words jumbling up and they expect you to understand or they speak slowly as if you can't catch their words.  A world where sound is different, sometimes things are loud, magnified and distorted.  They can’t see those things that crawl on the floor, so you pretend they don’t exist, nor can they see the others that often meet us in what they keep saying is my house.  It looks different and smells different and there are new people there who wander from room to room sitting and staring as if lost.

Amanda sometimes speaks in a tone like I’m her child, I never thought the tables would turn I never used to rely on anyone to help me, I tell her not to use that tone with me and I play along for a quiet life, but I do miss my mum.  These bones not quite what they used to be.  I ache as I get out of bed and then the alarm goes off, and they rush in your room - you sometimes don’t get a chance to breath, there is always someone there telling me what I should do, it is very different to how it use to be...."

It is different, I struggle to remember what it was like before, I've adapted as she changes and when I think about how she must feel I give her a bit of space.....so much has changed.  I cannot pretend I've got it all together or know all the ins and outs, but what I will try and do is face them head on and grab them with both hands and deal with each day as it comes.

Words so far....

A is for Alzheimer’s, B is for Behaviour, C is for Carer, D is for Dependant, E is for Enough, F is for Fear, G is for Guilt, H is for Health Professionals, I is forIdentity, J is for Judgement K is for Knowledge, L is for Love,  M is for Motherhood, N is for Neighbourhood, O is for Opportunities P is for Purpose, Q is for Quietness, R is for Regret, S is for Strategies, T is forTradition, U is for Understanding, V is for Value, W is for Websites

These posts are part of the A-Z Challenge taking place during the month of April.  I have been sharing about my experience as a carer to a mother with Dementia.  If you would like to know more join the Arts in Health Network and also check out my website for information on some of the work I have done with Creativity and Dementia.