Monday, 23 January 2017

Myeloma Cancer - What can you do?




Happy Birthday Robert Lloyd Trought

Robert, my brother would have been 48 today.  On 2nd June this year it would be 4 years since he passed, I look at the picture and it feels like he was just here.  I never told him enough that I loved, admired and was proud of him.  We can't wait until our loved ones die before or get sick before we tell them how treasured they are.

Robert was loving and encouraging and had 3 gorgeous children and in 2009 he was diagnosed with Multiple Myeloma. He fought the disease for 4 years in the percentage of people where the chemo and other debilitating drugs had little effect, the cancer spread all over his body. 
Surely we thought, a Bone Marrow transplant would help - as his sisters we were initially encouraged only to be told we were not a match - how could it be?  

As I look back I there were many things that I could have done differently, and we can't beat ourselves up as we did what we could at the time, I didn't want to deal with the possibility that he wouldn't pull through and hid behind caring for my mother.  The guilt creeps in, the 'would haves', 'should haves', and 'didn't do enough' start to ridicule you for being less than you thought you were.  But you have to make room for action, we will not accept ill health and disease as our fate and fight to find remedies, cures and prevention measures.

Death will come to us all, and we don't want to face it with any regrets.  So now that you have time on your side, be it a day, a week, month or even a year, make the most of it!

I share some of the journey of the time we held on to hope that things would be alright and he would stay with us in the following posts:




In the Memories of Home posts I share memories of growing up that I shared with my brother and sister.




What you can do?

Where ever you are in the world YOU CAN make a difference, find your local organisation and support their work.  

Here in Barbados one of the organisations we have is The Myeloma Lymphoma & Leukaemia Foundation of Barbados you can support by becoming a member $25 and support the events and initiatives that they put on.  We attended their Annual Tea Party, they have a number of acts performing, and it is a lovely event, a lot of work goes into organizing it.


Tea Party, always well attended!



Tea Party Dance Troupe

Co-Founder/President - Hyacinth Grimes

Tea Party Young Steel Pan Band, excellent!
They also do a lot of much needed fund raising as well at different events, malls etc, sharing information about the disease and help available.  So many people who are diagnosed in Barbados face very high medical bills, and are unable to afford some of the treatment that may readily be available in the UK or US.

Information available at their stall in Sky Mall


Member - Daphne Springer sharing her knowledge of blood cancers in Barbados
Contact the The Myeloma Lymphoma & Leukaemia Foundation of Barbados at:
  • Mailing address is P.O. Box 235, Bridgetown, Barbados, or Pine Medical Centre, 3rd Avenue, Belleville, St. Michael, Barbados.
  • Office phone number is (246) 435-3990.
  • General email address is: mllf.org@caribsurf.com
As an artist I will be creating a set of 3 Prints and Cards that you can purchase and 30% of the cost will be donated to the organisation.  I will tell you more in another post over the next few weeks.




Why not think of ways that you can donate or raise funds and do your part.

Donation

We also have a fund raising page in Roberts memory which is supporting Myeloma UK, and Cancer Research please help raise funds for more research, if we all do our bit we can one day find cures to prevent others from loosing their loved ones.

Give Blood/Bone Marrow


Give Blood - If you have had a blood transfusion prior to 1995 you will not be able to give blood see HERE


Check out the following Organsiations

IF YOU WISH TO REGISTER AS A POTENTIAL BONE MARROW, BLOOD OR ORGAN DONOR VISIT: 
ACLT Office - Tel no. 020 8240 4480, 7A Rathbone Square, Tanfield Road, Croydon, CR0 4HA  Please call ACLT office to book a 30 minute appointment. 
NATIONAL BLOOD SERVICE; BLOOD DONATION CENTRES Tel 0300 123 2323
Anthony Nolan Register Tel no. 0303 303 0303You must be aged between 16 and 30 and generally healthy
DKMS - DELETE BLOOD CANCER Tel no. 020 8735 4230To everyone over 30 who can't join the Anthony Nolan bone marrow register. You can now join via DKMS ‘Delete Blood Cancer' Please CLICK HERE They will register potential bone marrow donors from 17 to 55 years. You must weigh over 7st 12Ibs in weight

Robert, see, your memory lives on in our hearts through your children, family and friends!  So too all those who remember family members and friends who have died from Cancer.
What ever you can do is appreciated, do it today, don't wait, don't put it off, think creatively how you may be able to support, it could be money, time, skill, bake sale, car wash, art classes - we can do it together!  

Stay blessed and be a blessing.
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