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Sometimes mum gets confused between night and day, you could be up till all hours convincing her that it is time for bed, I have had to develop
strategies to cope with her understanding of time and can sometimes operate in the twilight zone myself!
A different strategy is called for when dealing with some health service workers. In their efforts to deal with what 'current policy' says some can get defensive when you question the practicalities. Recently in asking for a few weeks respite break they ask me why I need it, (even though I have to pay for it, they determine if it is justified!)....on top of that some of mums information is missing.
I had to learn over the years among other things to alter the tone of my voice and find different ways of
communicating that sometimes works and other times won't. In my moments of frustration too tired to find a different strategy to convince her back to bed she tells me not to use a particular tone or remind me that I too
sometimes forget.
A different strategy is called for when dealing with some health service workers. In their efforts to deal with what 'current policy' says some can get defensive when you question the practicalities. Recently in asking for a few weeks respite break they ask me why I need it, (even though I have to pay for it, they determine if it is justified!)....on top of that some of mums information is missing.
I take a deep breath and smile as I respond to their
questioning mentioning my surprise that the information is missing after 3 years on the system and how frustrating for the carer this can be. I am told nothing has been decided and to call back the following week. The next person I speak to tells me that the notes on mums file say I
was "agitated", he is less defensive, and cheerful and so I explain to him that I was concerned and worried that important information could go missing especially when it was time sensitive. He says he understands, but my request has not yet become a priority, I should ring back the following week.
Yes...strategies....... in the meantime I've found hot chocolate and Camomile works a treat....I will see if I can get 40 winks!
Words so far....
A is for Alzheimer’s, B is for Behaviour, C is for Carer, D is for Dependant, E is for Enough, F is for Fear, G is for Guilt, H is for Health Professionals, I is for Identity, J is for Judgement K is for Knowledge, L is for Love, M is for Motherhood, N is for Neighbourhood, O is for Opportunities P is for Purpose, Q is for Quietness, R is for Regret
These posts are part of the A-Z Challenge taking place during the month of April. I have been sharing about my experience as a carer to a mother with Dementia. If you would like to know more join the Arts in Health Network and also check out my website for information on some of the work I have done with Creativity and Dementia.
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