Showing posts with label dementia. Show all posts
Showing posts with label dementia. Show all posts

Saturday 18 October 2014

UBC Day 18 - Time for a book - Tips for Carer

Welcome to today's Ultimate Blog Challenge, with every day an opportunity as a carer to do something different and enhance your life and those you care for.

Mum - out and about with the family
I have always loved to read, but since becoming a carer to my mother who has dementia, those things I really enjoy doing seemed to slip to the wayside.  I was running back and forwards from my mums home to my own, sometimes with time only to catch my breath, see my son, grab a quick snack and head out again. The thought of sitting down with a book and getting lost in the plot seemed far away as there was always something else to be done, and when I tried to do some reading before bed I was always too tired.

 Make way for the Kindle!
Kindle for Christmas!
One Christmas my husband got me a Kindle Fire, and it has been one of the most used gifts ever.  I wrote a review of my kindle on the blog, and I love it, I have always got it on me.  One of the great things I have been making use of is the text reading function which pretty much turns every book you buy into an audio book.  When I am in the car I select a book that I want to read and make my way to my mums.  This really kept me going for the 40 minutes drive, I was transported to wonderful destinations, and I also use it to read a lot of training books as well.  The kindle also came in handy when you were doing those tasks that didn't require you to think, but needed you physically present.  I either turn the book function on or music and it helps you to feel a bit more of a person, because you are giving back a piece of yourself.

We all need some time to ourselves!
The essence of today's post is to encourage you to find some way to best use the time you have and those in between times say if you have to wait for appointments.  There was one year where I was either going to a hospital or doctors appointment with my mum.  I found that when we were collected for an appointment by transport they would come at least and hour and a half early and then you would be left waiting around.  Armed with my kindle, I could occupy myself and my mum at the same time.  Another great feature of the kindle is being able to connect to WiFi and social media, it is like a mini tablet.

For now, try and identify some of the things that you enjoy doing that you can create a space for - remember 15 minutes each day is easier to find in your schedule than a couple of hours.  Make the most to keep yourself and your mind nourished as you go about your caring role.

You can also click on the 'Celebrating life' image to be taken to the rest of the posts from the Journey of a Carer.

Tuesday 7 October 2014

UBC - Day 7 - Encourage - Tips for Carers

Welcome to day 7 of the Ultimate Blog Challenge, 
Tips for Carers

It can be very easy at times to loose your cool, you get frustrated and then annoyed at something that you need them to do that they are not doing, or appear to be sabotaging.  I must admit at times I have got angry at mum thinking that she is doing something on purpose, and I think that these things stem from fear, when you think about the thing that they were quite alright doing, suddenly the next day they don't have a clue how to do it.

I remember the day mum couldn't work out how to get out of her bed room.  This was in the early days and I had gone round there and my key wouldn't open the door as she had put the chain on the door.  I rang the bell and couldn't understand why she hadn't come to the door yet, I knew she was in, I kept calling through the door but didn't hear anything, so I started looking through the bedrooms thinking something must have happened.  


I was shocked when saw her through her bedroom window trying to find the door which was directly in front of her, there wasn't anything wrong with her vision but she just couldn't work it out, she kept feeling the walls and muttering to herself.  I was scared, for her and what it meant for me, as there would have to be things implemented to cope with this new change.  I called to her through the window and directed her to the door, and then when she got to it she came straight to the front door and opened it for me.


Over the years, I had to keep reminding myself that if we focused on what she could do for herself and encourage her along the way this took the anxiety out of the situation that was changing.  I am not saying that I don't get frustrated at times, but I have to  put it in perspective and celebrate all thing things that she can still do, and today being able to feed herself is something to celebrate.


For now, think about all the things that they can do and celebrate no matter how small.  The encouragement that you can give will mean so much to them, and help you put things into perspective as well!


Check out some of my A-Z posts on my journey as a carer, click on the links below


You can also click on the 'Celebrating life' image to be taken to the rest of the posts about my A-Z experience as a carer.

Monday 6 October 2014

UBC - Day 6 - Tips for Carers - Family and Friends

Caring for a loved one can be such an isolating experience with dementia unlike say a broken leg, the leg gets better people can see that the leg is broken and so there are certain expectations about things that you are unable to do.  With dementia there isn't necessarily any outward sign, as it gets worse and ravages the memory and leaves its after effects on its unwilling participants

As the carer I have found that your relationships with family and friends can suffer, as you try and navigate your way around the changes to your routines and additional things that you need to do in order to manage the caring role, you can end up drifting from your social life, too tired to call friends when you've been up all night trying to get your loved one back in bed cause they think it is day time.  

This is the same for those with dementia, people don't know what to say, they feel awkward with the silences and stop calling or passing by.  Where possible if you can have a few people that you can call on and will call you every now and again even if it is just to say hi, it is important that you keep the connections going, and for your loved one hearing a familiar voice of someone they know can help both of you.  

You could ask friends and family to make a voice recording of things they have been doing that week and play it back.  It is a way that they can feel included in things that are going on around them. There is lots of technology that you can use to facilitate this and it is also good for those people whose family live abroad.

For now, get together with family members and a few friends and ask them to be part of a schedule where they call once a week to see how things are going, or even come round and give you a much needed break!


Sunday 5 October 2014

UBC - Day 5 Independence - Tips for Carers

Welcome to day 5 of the Ultimate Blog Challenge - Independence - Tips for Carers


In 2001 we had a family holiday to Florida with my mum, sister and my husbands side of the family, and mum was in the early stages of dementia, living on her own and pretty much independent.  When we decided to go to one of the theme parks with mum I suggested that we get a wheel chair as there was quite a bit of walking, mum point blankly refused to even consider using it.  While I saw it as a means of convenience and getting around quickly, mum saw it as taking away her independence, and she remarked to a family friend that she needed to hold on to her independence for as long as possible as when there is no one around she is going going to have to take care of her self.  On hearing this I saw how much I needed to at times step back and let her take her own time to do things. 

The world was not going to end if she took an extra 15 minutes to do something and I had to work around her time whenever possible.  I found that while and in the midst of her loosing her independence it actually gave her a sense of being independent, and so impacted on her health and well-being and how she felt.  You have to help the ones that you are caring for feel as if they are holding on to a part of themselves especially, in an environment where nothing is the same and constantly changes as the memory decreases.

For today, give yourself that extra bit of time to get through the days activities, in doing so you create less stress and impact greatly on your overall heath and well-being.

Saturday 4 October 2014

UBC - Day 4 - Remember their story - Tips for Carers

Remember their story........
  
  
Welcome to Day 4 of the Ultimate Blog Challenge. 

In the early days of mums dementia we would find that she would repeat herself a lot of the time.  We didn’t know or expect to be where we are now and the decline over the years rapidly increased.  Mum would talk a lot about my father who had pass many years previously and she would recount the story of them meeting and how she had her eye on him.  She told us that when he saw her he called to her – she played hard to get for a while and then the rest resulted in 3 children and many years of happy marriage.  I didn’t understand how important those stories would be to me as time when on and these are the same stories that I repeat back to her hoping to spark a memory or bring a smile to her face.


The decline in memory even with medication is inevitable but one of the things that I have found helped greatly was putting together a book filled with photographs and a little bit of information.  It is just an A5 book and I printing out some of the pictures, if you want to create something bigger you can.. 


I also created this folder with information that anyone who is with mum can go through with her and get her to talk about some of the images and interact This means that even if you don’t know her you can engage her and help her to recapture her story, sometimes she just listens and sometimes you get a smile from her as she has taken the information in. 



This is also a good exercise to do with the younger generation; if you have photographs of when you were younger get them out and start talking about those times.  There is so much about our stories that are lost and don’t get handed down and end up in a box as old photographs.  I encourage you to spend some time capturing the stories and keeping the memories alive, you can never underestimate the power of those times spent sharing.


For today, take one photo at a time, and remember and record the memories.  Do leave a comment and tell me what you do with the photographs that you have in your collection....Blessings!

Thursday 2 October 2014

UBC - Day 2 Tips for Carers - Organised

Ultimate Blog Challenge - Day 2

I don't think that anyone gets up and decides that they want to be a carer, and it was never anything that ever crossed my mind that one day I would be looking after my mother.  You grow with expectations that you will see your parents live to a ripe age in relatively good health, and in turn see your children and your children's children grow up, but when your parent gets ill you realise that it is not going to happen like that.  There was no manual, no preparation, no guidance only fear, loss and sadness.
Mum when we were kids

In the beginning I didn't want to ask for help thinking that I should know how to look after my mum, and thought that asking for help would be seen as a sign of weakness.  The very thought of admitting that there was even something wrong in my mind reflected on who I was as a person.
Mum spending time with me at my home when I was 25
I found that being organised in your feelings and emotions is a way to take some of the stress out of what is needed.  This revelation came quite by chance.  I began to separate the functional needs from the emotional ones and this made it easier to deal with what had to be done, and it allowed me time to deal with how I felt about the situation.

Organised

When I allowed myself to just think about what had to be done practically, like taking mum in her wheelchair to the doctors for a check up, all I allowed myself to do was walk through all the practicalities, and give myself enough time to get there.  I didn't think about how I felt about doing it, or how sad I felt about her having to use the wheelchair, all I focused on was that the wheelchair gave us flexibility and we were able to get where we needed quicker than if she had to walk, it also took some of the strain and stress off her as I then didn't become frustrated with thinking about whether we would be on time or not.

Emotional

Mum and Robert at a family sports day

I know that at some point I am going to get emotional about the fact that mum cannot do what she used to.  If you are a carer you will have shed tears of frustration, loss, sorrow, or sobbed when tired and just wanted it all to stop.  I questioned how much longer I would have to care for her, and the lost of time that will not be refunded when I couldn't be with my son in the early days.  All these emotions need to be addressed and need to be heard and dealt with.  In later posts I will share some of the ways in which you can use creative activities. 

For today try and organise the tasks that you need to do and find a gentle way of dealing with the emotional issues that come up

                         Celebrating Life

You can also click on the 'Celebrating life' image to be taken to the rest of the posts

Yesterday was International Day of Older Persons, what did you managed to do to celebrate the life of an elderly person. You don't have to wait for one special day but can do a little something every day, hear their stories, pass these stories onto the young and continue to celebrate their contribution to your lives and your communities. 

Also check out Silver Sunday which is an annual day of fun and free activities for older people across the UK. Led by The Sir Simon Milton Foundation, it celebrates older people and their contribution to our communities while combating loneliness and isolation. Everyone can get involved, and you can organise your own event, spread the word, or simply attending an activity. Silver Sunday will take place on 5th October 2014!

Reflections and Image - Amanda Trought, Realityarts




Wednesday 1 October 2014

Ultimate Blog Challenge - Day 1 - 31 Tips for Carers and more!


I am taking part in the Ultimate Blog Challenge where you post every day for the month of October.  I am looking forward to visiting new blogs, gleaning new information and be inspired.  It starts today, and it really makes you wonder where all the year has gone to.

It will be a challenge, and it will also be great if you can stop by for these posts, and check out some of the others that I will be posting.



My focus for the month will be about identifying 31 tips or nuggets of inspiration that might help you if you are a carer, or know someone who is a carer or about to take on the caring role.  My focus is dementia as that is where my experience lies as I look after my mother, but you can adapt it for any other caring setting. I will also include things that you can do for yourself as the carer.  I have written about my journey as a carer and when I did the A-Z challenge a few years ago I focused on aspects of care and things that I had come to my attention as I navigated the role.  I will share a link to the posts at the end of each day and you can go and check them out.

Whilst my mother is physically unable to do much for herself and now uses a wheelchair some of the suggestions will suit both the wheelchair bound and those who are able to walk about. 

Thinking about these activities and tips have helped me, there has been help and support along the way but it didn't always come easy and I have had to adapt to suit our particular situation.  It is not an exhaustive list of ideas but but it is a start and might help you along the way, and help you incorporate creativity into your lives.  I hope that it can be of use to you, share with others, let me know what has worked for you In all cases, adapt to suit your needs and circumstances and above all have fun and be thankful for the day that you have regardless what you are able to do.

Celebrating Life

Here is the first of the A-Z challenge posts that I have shared that will help you understand our story - A is for Alzheimer’s  You can also click on the 'Celebrating life' image to be taken to the rest of the posts

Today is International Day of Older Persons, what ever you can do to celebrate the life of an elderly person will mean so much in the life of another, do you have any elderly relatives, neighbours that you can check up on and see if there is anything you can do to assist.  Celebrate their contribution to your lives and your communities.  

Also check out Silver Sunday which is an annual day of fun and free activities for older people across the UK. Led by The Sir Simon Milton Foundation, it celebrates older people and their contribution to our communities while combating loneliness and isolation. Everyone can get involved, and you can organise your own event, spread the word, or simply attending an activity.   Silver Sunday will take place on 5th October 2014!

So there we have it, quite a lot to think about and while you prepare yourself for a month of insight, reflection and creativity the first tip is this:

Reflections and Image - Amanda Trought - Realityarts


Sunday 16 March 2014

Moving Home....Adapting to needs

One of mums many ornaments!

This weekend finds me packing boxes, not of my own home but that of my mums.  Her needs have increased and we needed to find a place that had a lift or easy access for a wheel chair.  I was thinking with my practical head, and I got the boxes and tap and other packing materials ready.  As I have been making my way around the rooms I see that this job is far bigger than I expected it to be. I didn't realize that with every item that I pick up I would be confronted with memories, and times from my childhood, some sadness with the losses, knowing that change has to come.
Moving unearths many things....
As a child I as many do thought my parents would live for ever, never get old, and we would always come back and have dinners on. This was my family home from the age of 7 and quite a number of years have passed.  I understand now why I had to do the 'Memories of Home' posts, for a time like this.  When I first started the posts moving wasn't even a thought, I knew that I needed at some time to do something as mums needs had increased and carrying a wheelchair up the stairs has been impacting on my own health, but thought I had more time.  Anyway each room holds it's own memories that I have been savoring.
Hands off! Some of dads prized glasses
When we were little, my dad brought a drinks cabinet that held a large array of glasses that we were never allowed to use, so many tumblers, wine, liqueur and champagne glasses - it wasn't as if he was a drinker.  They were for best in case we had visitors, the glasses sit all uniform side by side, we kept up the tradition when my dad died of periodically dusting and not allowing our kids to use them.  Mum would say that one day a section of the cabinet and the contents would be passed each of the children, how do you sound grateful and turn down the offer,  we have no room in our own homes.  Now Robert has gone, mums new place has no space, it has to find a new home.
Jugs and glasses fill the cabinet
There are so many things that we have collected that recapture the memories and that connection that was once thought forgotten, I have been showing some of them to mum to see if it sparks some memories for her. We all reminiscence at some point whether it is talking about something we did 20 years ago or last month.
Egg cups we used as children

Looking around my mums home I am reminded of many things of my past that as children we used, the egg cups above had a lid to keep them warm, mum would make us egg and soldiers that we would dunk.
Soda Stream, one of the earlier kinds!
Soda stream – this is one of the older versions that my dad would use and we would have sparkling drinks, we used it quite a lot in favor of the fizzy drinks you could buy in the shops.


This statue is one that my dad got and has been in the family for years, not sure where he got it from, it is funny that the things that were so precious for one person might not be so for another and when you are gone you can't take it with you.  I am going to make up a memory box out of things that would trigger a memory that could be a talking point to spark my mums memory, for some of them it will just have to be the photograph!  

We turn a corner and I busy myself again with wrapping up glasses and plates and seeing what can find a new home, this week will definitely be a busy one and every now and again an emotional roller-coaster, but also provide comfort as we remember and take stock of our lives. 

What will this week hold for you?

Saturday 12 October 2013

Strength - Creating in Faith


Creating in Faith - Strength
Physical strength is something that we all possess to varying degrees and we can build upon it through training and exercise.  Inner strength is something far different built up from the trials we have been through and calls on reserves from a place that at times can be tested to the limit, and we can find ourselves wondering if we can make it through, whatever the situation, ready to throw in the towel one minute to the next being able to see some rays of sunshine and hope.

I have had my inner strength tested to varying degrees over the past 15 years and seen the strength of others tested in different ways.  Having looked after my mother and shared her journey on my blog, there have been moments where I wasn't sure if I could cope, or if I wanted to carry on.  In April early this year she suffered from a mini stroke and then another one in July while we were away on holiday.  As she ventures on the road to some form of recovery I am thankful that she is still here.  

We have shared our joy, laughter and pain as we venture into still unknown dementia territory, as her main carer I try and find things that will make her life more comfortable and look at ways to make her environment safe.  At the moment she has trouble walking, and her vision is very poor, so we have to look at alternative accommodation and preempt things that may arise and try and make her remaining years as comfortable as possible. 

In March 2011, Barbara my fellow artist and best friend of over 30 years passed away suddenly, no warning, no sickness, nothing leaving behind a husband and 5 children.  Our worlds were turned upside down.  I admired the strength that her husband showed, whilst in his pain he was there for everyone else, always asking how you were, giving you encouragement or seeing if there was anything he could do for you.  He pulled the family together, he had to, he was tested in the fire, there were some very dark times and it seemed inconceivable that he would ever see a glimmer of light, but on 4th October this year 2 ½ years after Barbara’s death he met someone that showed him how to laugh again and they celebrated their wedding along with family and friends.

On 2nd June this year, my brother passed after fighting multiple myeloma for 4 years, I am still trying to be strong calling on the experiences that I have been through, it doesn't feel like he is gone sometimes, I sometimes shaking my head in disbelief that this could have happened.  I look at the strength that Frances his wife has to call on to be there for their 3 children, to carry on doing the routines that used to be shared.  I wonder how I would have coped, with every corner a reminder of the loss. 

I was at the hospital right before he went to be with the Lord, not ever imagining that it could ever happen, hoping that it was a nightmare or to be able to flick the switch and change the channel.  Robert had said to me in 1992 when my father passed away that we had to be strong for my mother and we were.  Through my tears on the 2nd June I knew that I had to find the strength, I was not alone in my grief and as we shared our memories and experiences our pain was and will be eased.
God says that he will never leave or forsake us, and that we can do all things through Him who gives us strength and I must say that despite the past few years my strength has truly come from God.  There is nothing that we can do on our own; we know others who have suffered things that we don’t even want to contemplate.  I talk to my son talk about Robert and the times we shared as children and growing up.  I also tell him about all those who risked their lives, fought and died so that he could be free and in his soon to be 18th years allowed to vote and to be able to enjoy a life where his views and thoughts can make a difference – the generation of tomorrow.

Whatever you are going through remember that you are not on your own.  There are others who are praying for you, reaching out to you, lifting you up, and hearing your story, hearing your voice.  You will see that you are not on the journey alone, for in our strength we will begin to breathe again one day at a time.

Aim for perfection, listen to my appeal, be of one mind, live in peace.  And the God of love and peace will be with you... 2 Corinthians 13:11

Heaven and earth shall pass away, but My words shall not pass away... Matthew 24:35


Tuesday 20 November 2012

Creative Interventions

I recently took part in some Art Therapy sessions for carers and found it really great to work with art materials in a space and time that was just for me.  It has been a regular feature in my work as a mixed media artist and I would recommend that you give it a try.  In this video I talk about the benefits of taking part in the sessions alongside what I learned about myself and how through creativity I deal with aspects of being a carer.


Sunday 29 April 2012

Z is for Zephyr


Zephyr - a soft gentle breeze of change 

It came on without warning, there were no loud noises a fanfare just a few tell tale signs.  It blew in as if on a gentle breeze, we all felt it as it brushed past us, noticing slight things but not really seeing as it settled at mums door.  Mum embraced all that she is and met it head on, and defines the world to mean something for her despite the situation.

She dances as it breezes through her memory, some became distant and others drifted in and out like the fallen leaves of autumn, yet, holding no regret she faces each day as new.  She has been a comfort and support as she still holds on to her humour and grace - she is all that she needs to be.

The dementia almost forces us to learn to use our senses in a very different way, learn a new language, see our lives differently.  We have each been called for a purpose, to touch each others lives, dig deeper make more effort, and go that extra mile as the lives of generations are changed.



Words so far....

A is for Alzheimer’s, B is for Behaviour, C is for Carer, D is for Dependant, E is for Enough, F is for Fear, G is for Guilt, H is for Health Professionals, I is forIdentity, J is for Judgement K is for Knowledge, L is for Love,  M is for Motherhood, N is for Neighbourhood, O is for Opportunities P is for Purpose, Q is for Quietness, R is for Regret, S is for Strategies, T is forTradition, U is for Understanding, V is for Value, W is for Websites, X is for Xerox, Y is for Yearn

These posts are part of the A-Z Challenge taking place during the month of April.  I have been sharing about my experience as a carer to a mother with Dementia.  If you would like to know more join the Arts in Health Network and also check out my website for information on some of the work I have done with Creativity and Dementia.

Saturday 28 April 2012

Y is for Yearn



I do sometimes long for things to go back to how they used to when mum didn’t have dementia, to have a bit of what I think is normality.  But if it did, perhaps I wouldn’t have seen so much of her, wouldn’t have got to know her like I have, to listen to her stories as she tells them over and over again of how she met my dad. 

Those stories some how brings his memory to life even though he has been gone for over 20 years but also brings me comfort.  There came a point where it didn’t matter how many times mum told the story as she became animated -  she remembered him calling out to her as she walked by and she turned coyly and asked ‘who me’ – she had actually noticed him before and wanted to catch his attention. We never heard the stories before the dementia and she never danced, but now she loves to sing and dance and calls herself ‘the dancing queen’ after the Abba song.

Yes I do sometimes yearn for a good night undisturbed sleep when I am there, but also I appreciate my life more and it is most certainly richer despite all the ups and downs.


Words so far....

A is for Alzheimer’s, B is for Behaviour, C is for Carer, D is for Dependant, E is for Enough, F is for Fear, G is for Guilt, H is for Health Professionals, I is forIdentity, J is for Judgement K is for Knowledge, L is for Love,  M is for Motherhood, N is for Neighbourhood, O is for Opportunities P is for Purpose, Q is for Quietness, R is for Regret, S is for Strategies, T is forTradition, U is for Understanding, V is for Value, W is for Websites, X is for Xerox

These posts are part of the A-Z Challenge taking place during the month of April.  I have been sharing about my experience as a carer to a mother with Dementia.  If you would like to know more join the Arts in Health Network and also check out my website for information on some of the work I have done with Creativity and Dementia.

Friday 27 April 2012

X is for Xerox (copy)


Living with dementia some times reminds me of a Xerox.  It can feel as if you don’t have the original person you grew up with but the copy of the person who is unable to do all those things you took for granted.  I always thought mum would still be giving me advice and our relationship would move on to the next stage of mother/adult daughter relationship. When I was ready to listen she was slowly retreating....

I often imagine how she would express what it is like to have this unknown dancing partner I try and put myself in her well worn shoes, which is not often as looking after the practicalities can be a welcome release from the emotional side.  Thinking about what she is thinking can bring up a whole different set of dialogues that sometimes go like this:
"People suddenly don't seem to understand they repeat themselves, ignore you or get annoyed at the things that you do.  You don’t quite do it quickly enough or the right way they sigh and breath heavily.  Their words jumbling up and they expect you to understand or they speak slowly as if you can't catch their words.  A world where sound is different, sometimes things are loud, magnified and distorted.  They can’t see those things that crawl on the floor, so you pretend they don’t exist, nor can they see the others that often meet us in what they keep saying is my house.  It looks different and smells different and there are new people there who wander from room to room sitting and staring as if lost.
Amanda sometimes speaks in a tone like I’m her child, I never thought the tables would turn I never used to rely on anyone to help me, I tell her not to use that tone with me and I play along for a quiet life, but I do miss my mum.  These bones not quite what they used to be.  I ache as I get out of bed and then the alarm goes off, and they rush in your room - you sometimes don’t get a chance to breath, there is always someone there telling me what I should do, it is very different to how it use to be...."
It is different, I struggle to remember what it was like before, I've adapted as she changes and when I think about how she must feel I give her a bit of space.....so much has changed.  I cannot pretend I've got it all together or know all the ins and outs, but what I will try and do is face them head on and grab them with both hands and deal with each day as it comes.

Words so far....

A is for Alzheimer’s, B is for Behaviour, C is for Carer, D is for Dependant, E is for Enough, F is for Fear, G is for Guilt, H is for Health Professionals, I is forIdentity, J is for Judgement K is for Knowledge, L is for Love,  M is for Motherhood, N is for Neighbourhood, O is for Opportunities P is for Purpose, Q is for Quietness, R is for Regret, S is for Strategies, T is forTradition, U is for Understanding, V is for Value, W is for Websites


These posts are part of the A-Z Challenge taking place during the month of April.  I have been sharing about my experience as a carer to a mother with Dementia.  If you would like to know more join the Arts in Health Network and also check out my website for information on some of the work I have done with Creativity and Dementia.

Wednesday 25 April 2012

W is for Websites


I thought I would list some of the great resources that I have come across over the years that have really helped not only for people who have dementia, but for those who are carers.  There are a range of websites that have provided information and encouragement. 

Arts in Health - NHS Network
Arts in Healthcare aims to promote, share and encourage the use of art and creativity in the healthcare environment. - This is a network that I started to encourage those involved with the arts to collaborate and share information. 

Arts 4 Dementia
To work in partnership with existing agencies to inspire and r;e-energise people living with dementia in the community, to bring fulfilment to their lives - and provide opportunities for quality time with their carers and loved ones - through engagement with their chosen art form. 

Arts and Dementia Network 
is a forum for the North East of England which aims to bring together and support professionals working in the arts, health and social care, who are interested in providing opportunities for people with dementia to engage in arts activity.

Culture and Wellbeing
Resources for creativity and health

London Arts in Health Forum
London Arts in Health Forum is a membership organisation which aims to develop the role of culture in wellbeing and to promote and support arts in health activity across London and nationally. 

There are so many more organisations out there, if you have come across any or you are an artist interested in sharing information join the Arts in Health Network and leave your details, from time to time we would like to feature any work of artists that involves creativity and health.

I also write and create resources that link the arts and health - through art journals, art work, images, and a patreon network you can also check them out:

Art and Creativity website

I am a mixed media artist and create art sculptures and wall hangings

Art Patreon
Creative videos art journal video tutorials, rewards and more

Gardening Patreon
Horticultural therapy, gardening in the caribbean

Realityarts on Amazon
Hints and tools, books and more as you journey into creativity


Words so far....

A is for Alzheimer’s, B is for Behaviour, C is for Carer, D is for Dependant, E is for Enough, F is for Fear, G is for Guilt, H is for Health Professionals, I is forIdentity, J is for Judgement K is for Knowledge, L is for Love,  M is for Motherhood, N is for Neighbourhood, O is for Opportunities P is for Purpose, Q is for Quietness, R is for Regret, S is for Strategies, T is for Tradition, U is for Understanding, V is for Value

These posts are part of the A-Z Challenge taking place during the month of April.  I have been sharing about my experience as a carer to a mother with Dementia.  If you would like to know more join the Arts in Health Network and also check out my website for information on some of the work I have done with Creativity and Dementia.
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